For those that have been following our dementia journey closely, I wanted to report a significant change in Pam's status. There has been a marked decline in her condition in the last 48 hours. While she is still eating, she is eating much less and drinking much less. She is declining to eat foods that were always her favorites. And she spends the bulk of each day sleeping. When trying to converse with her, her replies have little to do with the subject that you are asking about. I suspect that the hallucinations have returned.
So as of today, April 24, she has been placed on "final days" protocol by the hospice team. While her final passage may still be weeks away or longer, this protocol results in a significant increase in care visits from both skilled nursing, social workers, and chaplains (if desired). They have significantly reduced her medications to only those dealing with comfort. This change is difficult to process, emotionally. As much as we have all known that this disease has no cure, and that we try to prepare ourselves for this reality. We have learned that you can never really be prepared.
The family has received many offers of assistance and we appreciated it very much. Please bear with us as we focus on helping the grandsons navigate what is happening to Gmom.
I am so very sorry to hear this Bruce.
ReplyDeleteSo sorry to hear this Bruce. I will keep you and your family in my prayers. If you need anything, anything at all, I am only 45 minutes away. While I know what this disease is like, I can only imagine what you are dealing with emotionally.
ReplyDeleteHang in there Bruce, thinking of you and the family
ReplyDeleteThinking of you and your family, please don't hesitate to reach out for some brotherhood time. I really enjoyed our lunch. I. think its good to talk with people who are going through the same thing. Stay strong.
ReplyDeleteLoss of a long time spouse is very painful. I’m thinking of you.
ReplyDeleteSad to hear about the decline. Thinking about you - I know how hard this is for you. Sending Love your way!
ReplyDeletePraying for you both.Love you both 🤧
ReplyDeleteLoAnn
DeleteLove and courage to you on your journey "into the woods" Cuz. You WILL come out the other side to peace. Blessings.
ReplyDeleteSo sad to hear about Pam's status. Thinking of you and your family during this final stage of this terrible disease. Sending love to you all.
ReplyDeleteI’m so sorry Bruce, please let me know if I can help in any way. Your in my constant thoughts ~ much love Meagan Quattrucci
ReplyDeleteI am so sorry to hear this latest news, Bruce. You, the family and Pam are in my thoughts and prayers. It is s such a horrible disease. Love, Maureen
ReplyDeleteBruce,
ReplyDeleteThere is nothing we can add to what has already been said; you, Pam and your family are blessed to have so many supporters and well wishers. Please know we continue to admire the dedication you and the care team have shown - there is no "quit" in you! The love you have shown, on a daily basis honoring her wish to remain at home, is truly a gift to her from God.
Al & Joan